Hailey Mann Scotland medicines drug Hailey Mann Scotland

Scot with Cystic fibrosis fears she won't live to see miracle drug approved for use

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dailyrecord.co.uk

miracle drug that could change her life.Hailey Mann, 24, has advanced cystic fibrosis and believes taking Kaftrio will stabilise the condition long enough for her to get a lung transplant.The drug will soon be available on the NHS in Scotland but she fears she won’t live the few weeks it will take to get a European Medicines Agency licence.After we ­highlighted her case, NHS ­Grampian said it had sent paperwork to the drug company Vertex a day or two before.Vertex said she has to sign a data protection form before any decision on her case can be made.

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