Hailey Mann: Last News

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Cystic fibrosis sufferer saved by miracle drug celebrates Christmas she never thought she’d see

Christmas she thought she would never see.Hailey Mann, 24, had been told by medics to go home and prepare for end-of-life care as her cystic fibrosis reached crisis point earlier this year.Her lung function was just 15 per cent and her weight was so low she couldn’t be considered for a lung transplant.Her only hope lay in a miracle drug, Kaftrio.But while the Scottish Government had said it would be made available to everyone in Scotland who needed it after a successful campaign by the Record, the drug first had to be given a European licence which confirmed it was safe for use – and that licence would have come too late to save Hailey.After the Record stepped in, drug manufacturer Vertex agreed to give Hailey, from Aberdeenshire, Kaftrio
dailyrecord.co.uk

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