Hailey Mann: Last News

Christmas she thought she would never see.Hailey Mann, 24, had been told by medics to go home and prepare for end-of-life care as her cystic fibrosis reached crisis point earlier this year.Her lung function was just 15 per cent and her weight was so low she couldn’t be considered for a lung transplant.Her only hope lay in a miracle drug, Kaftrio.But while the Scottish Government had said it would be made available to everyone in Scotland who needed it after a successful campaign by the Record, the drug first had to be given a European licence which confirmed it was safe for use – and that licence would have come too late to save Hailey.After the Record stepped in, drug manufacturer Vertex agreed to give Hailey, from Aberdeenshire, Kaftrio

cystic fibrosis patient is enjoying her best period of health for three years.Hailey Mann, 24, had been told she was looking at end of life care even though she knew there was a drug, Kaftrio, which could help her.But because the drug - a real game changer - wasn’t licensed in Europe she could only get it on compassionate grounds from drug company Vertex.However, just days after the Daily Record began to campaign on her behalf, Vertex agreed she could get the drug.Cystic fibrosis causes a build-up of thick, sticky mucus in the lungs, digestive system and other organs, causing a wide range of challenging symptoms affecting the entire body.The deterioration in the lungs has meant the average life-span of someone with the disease is just

cystic fibrosis patient yesterday took the first dose of a medicine that could save her life – after a Daily Record campaign to get her the wonder drug. Hailey Mann, 24, said: “I collected the drugs on Wednesday but we kept it to ourselves to have a wee celebration and share my news when I had taken my first dose this morning.“I am so happy I finally have them.