Cystic fibrosis sufferer has made a harrowing plea for urgent access to a wonder drug which could save her life, telling medics: “I will soon be dead.
I don’t need to be.”Hailey Mann, 24, is pinning her hopes on life-transforming Kaftrio, which is yet to be fully licenced in Scotland, after being told she should start planning her end-of-life care.In a heartbreaking open letter shared with the Daily Record, Hailey, from Aberdeenshire, who is living with just 14 per cent lung function, today begs medics to give her “hope for a future”.Deals have been struck in England, Wales and Northern Ireland with Vertex Pharmaceuticals in recent weeks to make the triple gene therapy drug available for patients there as soon as the European Commission.
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