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Boy, 4, with rare condition stopped from going to school as mum slams coronavirus rule

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www.dailystar.co.uk

coronavirus – despite being no more at risk than his classmates. Ryan Henry-Macklin, 4, has Treacher-Collins Syndrome, a rare disorder which stops the bones in his face from forming properly.

He has been home from nursery since March and will now miss his first day of school due to coronavirus, the Mirror reports. Ryan faces medical challenges as a result of his disorder everyday and they have left him with a small jaw and upper airway.So that Ryan can breath properly, he has had a tracheostemy, which is a tube that has been inserted into his neck.Ryan also wears a humidifier and a bib when he is out of the house – which means his breathing device is neatly contained when he clears it by coughing.The four-year-old does not cough anymore.

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