A six-year-old boy with a genetic syndrome almost died "three times in two weeks", his mum said. Maxen Shaw has faced open heart surgery and risked to lose his life on several occasions.
The young boy fights with several conditions including congenital heart disease, lowered immunity, hypocalcemia seizures and is currently under 32 different consultants.
His mum Caroline Shaw has now spoken out to raise awareness of another condition, 22q, also known as DiGeorge Syndrome, Lancs Live reports.
The disorder is caused by a small missing piece of the 22nd chromosome and can affect every system in the human body. It is believed to be the second most common genetic disorder behind Down's Syndrome, but despite this it is still not widely known.
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