family are heartbroken after being told a vital operation that would stop their daughter from choking might also kill her. Claire and Martin Greenwood's daughter Jessica, 11, has a rare genetic disorder which means she is unable to swallow and is at constant risk of choking on her own saliva.
The condition means she has to be treated with a brutal suction machine around the clock which, mum Claire, 35, says is "like having four Covid tests an hour".
The Dreghorn family's world collapsed last year when medics told Claire and Martin, both 36, that not only did Jessica have the terminal Pontocerebellar Hypoplasia, but their 12-year-old son, Liam, was diagnosed with it too.
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