A mum whose daughter has an incredibly rare blood disorder claims her family has been forced to move 200 miles to London to access specialist treatment.
Two-year-old Lilly-anna Myles is one of just 200 people in the UK with Diamond-Blackfan anaemia. She was diagnosed with the genetic blood disorder when she was just six months old after her mum Franchesca noticed she wasn't hitting her milestones or gaining weight as she expected.
The type of anaemia affects the ability of the bone marrow to produce red blood cells and means Lilly-anna needs blood transfusions every three weeks, putting the little girl through her several hours in hospital each time.
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