He has asthma-like symptoms, struggles with walking and, when playing with his two-year-old little girl, has to wear ear defenders to block his hyper-sensitivity to movement and sound.
Yet, doting dad-of-one, Jerome van Leeuwen, knows it’s all in his head – because he is, and has been since a toddler, living with a brain tumour.Jerome was his daughter’s age when he was diagnosed with a pilocytic astrocytoma brain tumour – the most common type of brain and spinal cord tumour in children.
Although surgeons were convinced they had completely removed the tumour, Jerome – who is now aged 42 – had regular scans until he was 15 years old.But then, in 2012, he began complaining of migraines.
Mindful of his brain tumour history, his doctor referred him for a scan, which revealed the unthinkable – he had a walnut-sized brain tumour.It, too, was a pilocytic astrocytoma, meaning that Jerome and his loving family had to wrestle with the devastating news that his brain tumour had returned.
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