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03.09.2024 / 12:39

‘My son has childhood Alzheimer's - I mourn the future he'll never have'

Seventeen-year-old Logan Pacl suffers from Sanfilippo syndrome, often referred to as 'childhood Alzheimer's' or 'childhood-onset dementia' and his family have shared their deeply personal journey or raising a teenage son with a rare and terminal disorder.This genetic neurodegenerative disorder is caused by a single gene defect that specifically attacks the brain and spinal cord of children, gradually erasing any skills they once had. It also causes pain, seizures, and movement disorders.There is no cure for the disease, and most children die by the time they reach their mid-teens.

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Arden Myrin Joins Chad Hartigan Rom-Com ‘The Threesome’

EXCLUSIVE: Arden Myrin (Insatiable) has been set to star alongside Zoey Deutch, Jonah Hauer-King, Ruby Cruz and more in director Chad Hartigan’s high-concept rom-com The Threesome for Star Thrower Entertainment, Filmopoly and Jupiter Peak.

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Jason Bateman To Star In, Direct 8-Ep Series Adaptation Of Esquire Article ‘Daddy Ball’ As Netflix, Aggregate Win Bidding Battle

EXCLUSIVE: Netflix and Aggregate prevailed in a bidding war to secure the rights to writer David Gauvey Herbert’s 2021 Esquire magazine article Daddy Ball. They will find a new title, but the source material will be developed as an 8-episode limited series that Ozark‘s Jason Bateman will both star in and direct. Bateman, Michael Costigan and Roxie Rodrigue will be co-EPs for Aggregate. David Klawans is also attached to produce the dark comedy limited series.

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'The Bachelorette' stars JoJo Fletcher and Jordan Rodgers are married: 'We feel so lucky!'

JoJo Fletcher and Jordan Rodgers finally said "I do" and were married nearly six years after meeting on the ABC reality dating show "The Bachelorette." The pair exchanged vows during an intimate ceremony with their closest friends and family at the Sunstone Winery in Santa Ynez, California, Saturday after previously postponing their nuptials twice due to the coronavirus pandemic. "It sounds cliché, but I really am marrying my best friend," the 31-year-old real estate developer told People magazine of her sports announcer husband. "Everything that's happened in our relationship has only made us stronger. And we just feel so lucky." JoJo Fletcher and Jordan Rodgers finally said "I do" nearly six years after meeting on ABC reality dating show "The Bachelorette." They visited "Extra" at the Levi's Store Times Square Oct.

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'The Bachelorette's' Jojo Fletcher and Jordan Rogers Get Married Six Years After Engagement

Jojo Fletcher and Jordan Rogers finally did it! The Bachelor Nation couple tied the knot during a ceremony with close friends and family, on Saturday, confirmed. Fletcher, 31, and Rogers, 33, got married six years after their engagement on the finale of The Bachelorette in 2016. According to, Fletcher and Rogers’ ceremony was held at Sunstone Winery in Santa Ynez, California.

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Vertical Entertainment Acquires Joey Ally’s Political Comedy ‘The Hater’; Ally Stars Alongside Bruce Dern, Meredith Hagner & More

EXCLUSIVE: Vertical Entertainment has acquired North American and UK/IRE rights to the political comedy The Hater, from writer-director Joey Ally (Uproot, Are You Still Singing), in which she stars alongside Bruce Dern (Nebraska, The Hateful Eight), Meredith Hagner (Search Party, Palm Springs), D’Angelo Lacy (aka musical artist Black Gatsby), Ian Harding (Pretty Little Liars, Ford v Ferrari), Ali Larter (The Last Victim, Resident Evil: The Final Chapter), and Nora Dunn (Together Together, The Lost Husband). The independent distributor has slated it for a day-and-date release on March 18.

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Scots dad of young daughter with childhood dementia shares harrowing reality of condition

A young Scots girl suffering from a ‘ Alzheimer's style’ illness has been left non-verbal as her harrowing condition continues to progress.

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Parents dream of sending girl, 6, with rare dementia to Disneyland after £10k raised

A little girl with a rare form of dementia may have her Disneyland dream realised - after £10,000 was raised for the trip of a lifetime.

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