Scots kids affected by painful butterfly condition meet Santa at special Christmas meet-up

dailyrecord.co.uk:

Butterfly skin charity DEBRA brought Christmas to Scots families impacted by the agonising condition, with a special Santa visit and gifts at a luxury hotel - and priceless connections with other EB families.

The charity’s Scottish team organised a special gathering at Cameron House for 15 familie s, to give them a festive treat but more importantly let them meet and talk with other adults and kids who deal with the same challenges.

Young Lewis Collins, 8, from Darvel has EB and was there with his brother Alex, 11, and their parents Thomas and Jo, who are regular Debra supporters but found this event really connected with Lewis.

Jo said: “We had a lovely day at the Christmas event. Alex loved the little private cinema and Lewis was very excited to go to Santa’s grotto and meet the man himself. “Thomas and I have been involved with quite a lot of Debra fundraising since Lewis was born but a lot of the events have been things we’ve done separately like attending the annual ladies lunch, going to the sportsmen’s dinner, and in Thomas’ case running the London marathon.