Mum's anguish as she is told both her children unlikely to live beyond 10

dailyrecord.co.uk:

A mum has shared her heartbreak after finding out that both of her children are unlikely to live over 10-years-old. Medics expect Theo and Oscar to live short lives but their parents are determined to ensure that they will be full of smiles.Courtney Webber realised something wasn't quite right when her son Oscar was born and had tremors in both his eyes and head.

After a series of tests, the now three-year-old was diagnosed with Pelizaeus-Merzbacher Disease (PMD), according to Staffordshire Live.

Courtney was pregnant with Theo at the time and invasive testing revealed that her youngest child also had the condition. The mum was given the option to terminate the pregnancy but decided against it and is hoping to give the boys the best life possible.Pelizaeus-Merzbacher Disease is a rare life-limiting brain condition, affecting only one in 900,000 children in the UK.It causes progressive deterioration and the boys have been given a prognosis of around 10 years.Courtney said: "Oscar has the biggest smile in the world - he just lights up the room."He's created the most beautiful bond with my nine-month-old.

We're watching them grow and flourish together."It's an awful situation we're in, but we're making the best of it."I've always said there are two roads that you can go down - the dark and dingy road or making the best of the situation."It's how you deal with it - and I always go down the positive path.