A little Alberta boy with a rare disease desperate to secure a multi-million dollar drug just got a boost from a famous Canadian actor.
Ryan Reynolds has pledged $5,000 toward Kaysen’s Quest. Kaysen Martin needs a life-saving gene therapy for spinal muscular atrophy Type 1 (SMA 1).
Zolgensma costs $2.8 million and has to be administered before a patient’s second birthday. For Martin, that’s on July 17. A GoFundMe campaign caught the attention of Vancouver-born Reynolds, as well as internet juggernaut Jillian Harris, who called on her 1.2 million followers to support Kaysen, and other kids with SMA 1.
Martin’s mother, Lana Bernardin, said she saw Ryan Reynold’s donation and said, “Never in a million years did I think someone like Ryan
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