'Bubbly' baby girl given just one month to live leaving mum heartbroken
dailyrecord.co.ukA mum was left heartbroken after doctors informed her that her "bubbly" baby daughter had just one month to live. Orla Haugh says she felt like she was "hit by a bus" after being given the harrowing verdict regarding her little girl, Ellen, reports Belfast Live.Orla and her husband, Andrew, welcomed their daughter into the world last year.
However, sadly, the Belfast couple had their family their lives torn apart within a few short months, after their baby developed a cough.On a trip to the hospital, they received the devastating news that their baby girl, who they lovingly called the Queen of Co Down, had a very rare hereditary condition called Gaucher Disease type 2.
According to the Gauchers Organisation, type 2 Gaucher disease is a very rare, rapidly progressive form of the condition, which affects the brain (central nervous system) as well as the spleen, liver, lungs and bones.Doctors then informed the parents that Ellen would likely pass away within a month.
Their darling daughter passed away in September 2022 at just seven months old. Her mother says the news was excruciating, as just hours earlier she had been laughing and having fun with Ellen while they made their way to the hospital.
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