Football legend Graeme Souness last night visited the Scottish Government to demand it takes action to help end the suffering of little Isla Grist and hundreds like her.
The former Rangers and Liverpool midfielder has championed Isla to highlight her devastating condition, epidermolysis bullosa – a rare, painful disorder which causes fragile, blistering skin.
He launched a fundraiser earlier this year for DEBRA, a charity seeking a cure for EB – known as butterfly skin – and joined a team to swim the English Channel, raising more than £1million.Last night, he teamed up with Isla’s dad Andy and Falklands veteran Simon Weston at a reception at the Scottish Parliament where they appealed to MSPs for cash for research and to carry out trials for drug repurposing.
Currently there is no government funding.Ahead of the reception Souness, 70, said: “Someone has to help these children. There are no creams, there is no medication, there are no drugs we can give them to take away this constant pain and this constant itchiness.“And every day is a groundhog day for them.
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