Emma Heming is revealing a sad truth about Bruce Willis. As the Die Hard actor continues to battle frontotemporal dementia, his family is struggling to come to terms with some of the very real symptoms of the degenerative brain disease.
On Monday, Emma stopped by Today for an interview with Hoda Kotb in honor of World Frontotemporal Dementia Awareness Week, where she revealed that she isn’t exactly sure if he’s even aware of his current state — which is taking a toll on the whole family.
She explained: So, so sad. Related: Amanda Bynes Thinking Of Leaving LA Amid Treatment?? She added that “it’s hard to know” if he knows what’s going on as the disease attacks your frontal lobe, which in turn can affect speech, emotions, personality, motor skills, and as Susan Dickinson, the CEO of the Association for Frontotemporal Degeneration put it, your “self-insight.” She explained: How completely devastating that must be.
Emma shared that coming to terms with her spouse’s reality has been a “blessing and a curse,” as it allows her to finally understand the extent of his condition, but that it doesn’t make it “any less painful.” She explained: She added that she rejects the term “caretaker,” and instead opts for “care partner,” sharing: However, she’s also trying to keep herself afloat with supportive resources: So very true.
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