“I can use so many words to describe it: excruciating, agonising, painful, severe," says one woman living with sickle cell disease.
The lifelong genetic condition can ruin lives - causing organ failure, strokes, loss of vision and can be fatal. But while medics and patients alike fight to raise awareness of sickle cell disease, experts say people still face difficulties in getting treatment when they need it most, even in emergencies.
To help stop the suffering of being unable to get help, Manchester is launching a pioneering new specialist unit and 24/7 helpline to make sure people with sickle cell disease from across the region get support when they need it.
The new sickle cell unit, based at Manchester Royal Infirmary, part of Manchester University NHS Foundation Trust (MFT), is the first of its kind in the country and will support patients living with the rare blood disease in Greater Manchester, Lancashire and Cumbria.
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