Daily Record reports.READ NEXT: Iconic bodybuilder’s knee ‘looked like bomb exploded’ after freak photoshoot injuryThe cause of the syndrome is unknown to doctors, but Julie admits she worries about her son’s future and prays that he will one day grow out of the incurable condition.She said: “It's such a rare condition, so it was very difficult to get a diagnosis.
When we finally did, but were told there is no cure, it was devastating.“He has tried so many different medicines to try and help, but nothing works.
It feels never ending. He often asks, 'Why me? Why do I have this and other kids don’t?' I can see it in his eyes and it just breaks my heart.“During his episodes, he has excess saliva and often can’t talk for up to two days.
It gets to the point where he is vomiting blood. When he was younger and couldn’t talk, we would use notes on his phone to communicate and he would type 'I’m sad'.“At present, he only attends around 75% of school.
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